Willkommen bei Rare Voices · Welcome to Rare Voices
Ein wertschätzender Ort für Menschen mit seltenen oder chronischen Erkrankungen, Angehörige und Unterstützende. Seltene Erkrankungen bleiben unser besonderer Schwerpunkt – zugleich ist jede chronisch kranke Person herzlich willkommen. Teile Erfahrungen, stelle Fragen oder lies einfach mit.
A supportive space for people living with rare or chronic illnesses, families and allies. Rare diseases remain our special focus, while everyone living with chronic illness is warmly welcome. Share experiences, ask questions or simply read along.
Lesen ist ohne Konto möglich. Zum Schreiben registrierst du dich kostenlos. · Reading is open to everyone. Free registration is required to post.
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When the Cold Weather Arrives – and the Pain Gets WorseIn Living with Rare Disease · September 9, 2026, 7:21 am
Wenn die Kälte kommt – und die Schmerzen zunehmenIn 💬 Austausch, Diagnose & Alltag · September 9, 2026, 7:19 am
A gentle start to the week — how are you doing? ☕💜In 💚 Austausch & Alltag · Daily Life · September 7, 2026, 5:57 am
Neue Woche, neues Durchatmen – wie geht es euch? ☕💜In 💬 Austausch, Diagnose & Alltag · September 7, 2026, 5:54 am
☕ Unser Wochenendtreff – wie geht es euch heute?In 💬 Austausch, Diagnose & Alltag · September 5, 2026, 6:53 am
🌟 Was war dein kleiner Lichtblick diese Woche?In 📖 Geschichten & kleine Erfolge · September 3, 2026, 6:05 am
💚 Willkommen: Chronisch krank, aber nicht allein · WelcomeIn 💚 Austausch & Alltag · Daily Life · September 1, 2026, 8:29 am
💜 What Should People Understand About Living With a Rare Disease?In Stories & Community Café · September 1, 2026, 5:36 am
Viele Auswirkungen einer seltenen Erkrankung sind für andere Menschen nicht sichtbar. Man kann gesund aussehen und trotzdem Schmerzen haben, völlig erschöpft sein oder täglich mit Unsicherheit kämpfen. Für mich ist besonders wichtig, dass Menschen verstIn 💬 Austausch, Diagnose & Alltag · September 1, 2026, 5:34 am
☕ Willkommen im Community Café – erzählt doch mal!In 📖 Geschichten & kleine Erfolge · August 29, 2026, 12:32 pm
Small Steps, Shared Strength – What Was Your Victory This Week?In Stories & Community Café · August 29, 2026, 4:45 am
☕ What helps you get through a difficult day?In Stories & Community Café · August 25, 2026, 10:16 am
☕ Was hilft euch an einem schwierigen Tag?In 💬 Austausch, Diagnose & Alltag · August 25, 2026, 10:13 am
💬 Was ist an deinem Alltag für andere oft unsichtbar?In 💬 Austausch, Diagnose & Alltag · August 21, 2026, 8:48 am
👋 Herzlich willkommen in unserer deutschsprachigen Community! Schön, dass du hier bist. 💜In Willkommen & Vorstellung · August 21, 2026, 8:47 am
💙 My Story – Why I Created RareDiseasesLensMagic1974In Stories & Community Café · August 20, 2026, 5:00 am
💙 Share Your Story – Your Voice MattersIn Stories & Community Café · August 20, 2026, 4:58 am
🌍 Rare diseases know no borders.In Welcome & Introductions · August 18, 2026, 6:11 am
🌍 Rare, but never alone – What does community mean to you?In Stories & Community Café · August 17, 2026, 6:13 am
💜 What gave you hope this week?In Stories & Community Café · August 15, 2026, 5:45 am
🌍 International Fabry Disease Forum 2026 in Tokyo 🇯🇵In Stories & Community Café · August 14, 2026, 6:21 am
What do you wish someone had told you after your diagnosis? 💜In Welcome & Introductions · August 12, 2026, 5:52 am
Gesundheitsreform 2026In Living with Rare Disease · August 2, 2026, 9:51 am
💜 You Don't Have to Understand My Disease to Understand MeIn Stories & Community Café · August 1, 2026, 6:04 am
💜 Let's get to know each other.In Stories & Community Café · July 28, 2026, 6:20 am
What small moment made you smile today?In Stories & Community Café · July 25, 2026, 6:46 am
Hope Can Be Found in the Smallest MomentsIn Stories & Community Café · July 22, 2026, 6:14 am
❤️ What helps you stay positive on difficult days?In Living with Rare Disease · July 14, 2026, 7:30 am
🧠 Do you experience brain fog?In Living with Rare Disease · July 14, 2026, 7:27 am
🌙 How does fatigue affect your everyday life?In Living with Rare Disease · July 14, 2026, 7:25 am
💙 What helps you on difficult pain days?In Living with Rare Disease · July 14, 2026, 7:24 am
🩺 How long did it take to receive your diagnosis?In Living with Rare Disease · July 14, 2026, 7:01 am
💙 Just Diagnosed? You're Not Alone.In Living with Rare Disease · July 14, 2026, 6:58 am
📜 Community Guidelines – Creating a Safe and Supportive SpaceIn Welcome & Introductions · July 14, 2026, 6:55 am
Hello and welcome!In Welcome & Introductions · July 14, 2026, 6:40 am
Welcome to the official announcement section.In Welcome & Introductions · July 13, 2026, 5:25 am
🌍 Welcome to Rare Voices – Please Introduce YourselfIn Welcome & Introductions · July 13, 2026, 5:22 am
Hello and welcome!In Welcome & Introductions · July 12, 2026, 9:31 am
Liza love miceIn Stories & Community Café · July 9, 2026, 11:57 am
Meet Liza – The Small Dog Who Probably Thinks She Runs EverythingIn Stories & Community Café · July 8, 2026, 7:24 am
Rare Voices Community Guidelines – Kindness, Respect & SafetyIn Welcome & Introductions · July 8, 2026, 7:19 am
Introduce Yourself – Say Hello in Your Own WayIn Welcome & Introductions · July 8, 2026, 7:18 am
Welcome to Rare Voices – A Personal Message from DanielIn Welcome & Introductions · July 8, 2026, 7:16 am