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🌍 International Fabry Disease Forum 2026 in Tokyo 🇯🇵
Hello everyone,
I have just discovered an event that could be very interesting for our Fabry and rare disease community:
1st International Fabry Disease Forum 2026
📅 October 2–3, 2026
📍 Tokyo, Japan
The forum will bring together experts and researchers from Japan, Asia, Europe and the United States to discuss Fabry disease.
Topics are expected to include research, diagnosis, treatment, newborn screening and future developments in Fabry disease.
For me, however, there is another important aspect:
International connection. 🌍
Rare diseases do not stop at national borders. People living with Fabry disease in Germany, Japan, Korea, the United States or anywhere else in the world may speak different languages and live within different healthcare systems – but many of our experiences, questions and hopes are very similar.
That is why international exchange is so important.
Through RareDiseasesLensMagic1974, I am currently working to build connections with rare disease and Fabry communities around the world.
I am also looking into the possibility of attending the International Fabry Disease Forum in Tokyo as a patient advocate and representative of our community.
💬 Now I would love to hear from you:
Have you heard about this forum?
Are you planning to attend?
And would you like to see reports, interviews and impressions from Tokyo here in our community if I am able to participate?
I would love to hear your thoughts. 💜
Rare. Proud. United.
Daniel
Founder – RareDiseasesLensMagic1974