FROM OUR COMMUNITY
Updates, perspectives and connections.
News and insights from our rare and chronic illness community. Follow the people, ideas and projects shaping Rare & Chronic Voices.
Read at your own pace. Articles are available in English, German and Spanish.
IN FOCUS · 23 OCTOBER 2026
Growing together
Ina and Anja are joining Daniel as our first two volunteers. Read about their roles and the next steps towards a future charitable association in Germany.
We are preparing for that future; Rare & Chronic Voices does not yet have recognised charitable status.
Latest news & insights
Community updates, invitations to take part and connections across borders. The newest articles appear first.
- Un saludo desde Alemania a nuestra comunidad en EspañaUna bienvenida de Daniel a las personas de España que viven con enfermedades raras o crónicas, a sus familias y cuidadores. Descubre nuestro foro en español.
- A Hello from Germany to the United StatesA personal welcome from Daniel to people in the United States living with rare or chronic illnesses, their families, and caregivers. Explore our English forum at your own pace.
- Growing Together – The Next Steps for Rare & Chronic VoicesMeet Ina and Anja, our first two volunteers, as we begin preparing for the next chapter of Rare & Chronic Voices and work towards charitable status in Germany.
- Frage der Woche: Was hätten Sie sich nach Ihrer Diagnose gewünscht?Was hätten Sie sich nach Ihrer Diagnose gewünscht? Teilen Sie Ihre Erfahrungen und Gedanken in unserer Community für seltene und chronische Erkrankungen.
- Una nueva imagen para Rare & Chronic VoicesNuestra página de inicio tiene una nueva imagen. Te invito a visitarla y a contarme qué te gusta y qué echas en falta.
- A New Look for Rare & Chronic VoicesOur homepage has a new look. Take a look around and tell me what you like and what you feel is still missing.
More voices to discover
Patient stories
Personal experiences from people living with rare or chronic conditions and their families.
The personal blog
Everyday moments, nature, photography and reflections from Daniel and the team.
Rare Voices Forum
Share your perspective, ask a question or simply read along. A few words are enough.
Deutsch
Hier findest du Neuigkeiten von Rare & Chronic Voices, Einblicke in unsere Projekte und Beiträge aus der Community. Persönliche Alltagstexte findest du weiterhin im Blog.
Español
Aquí encontrarás novedades de Rare & Chronic Voices, noticias de nuestros proyectos y perspectivas de la comunidad. Las reflexiones personales siguen disponibles en el blog.
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