Willkommen bei Rare Voices · Welcome to Rare Voices
Ein wertschätzender Ort für Menschen mit seltenen oder chronischen Erkrankungen, Angehörige und Unterstützende. Seltene Erkrankungen bleiben unser besonderer Schwerpunkt – zugleich ist jede chronisch kranke Person herzlich willkommen. Teile Erfahrungen, stelle Fragen oder lies einfach mit.
A supportive space for people living with rare or chronic illnesses, families and allies. Rare diseases remain our special focus, while everyone living with chronic illness is warmly welcome. Share experiences, ask questions or simply read along.
Lesen ist ohne Konto möglich. Zum Schreiben registrierst du dich kostenlos. · Reading is open to everyone. Free registration is required to post.
When the Cold Weather Arrives – and the Pain Gets Worse
When the Cold Weather Arrives – and the Pain Gets Worse
Now that autumn is slowly approaching and temperatures are beginning to fall, my physical symptoms are getting worse again.
I notice it most in the nerve pain in my feet and hands. That is definitely something I could do without. 😂
I feel the impact of these symptoms especially when I am at work. I work in a newsstand, and when my hands hurt or my fingers become numb, stocking newspapers and magazines is not easy. Tasks that seem completely ordinary to other people can suddenly become a real challenge.
That makes me even more grateful for the times when I am not in pain. Fortunately, those moments are still quite frequent at the moment. I have learned to appreciate pain-free hours and days in a completely different way.
On more difficult days, it helps me to look forward to finishing work and to the good things waiting for me afterwards. I think about taking Liza, my dog, outside. Spending time together and getting some fresh air always does me good.
I especially look forward to the afternoons when my son comes to visit me. That gives me a great deal of strength, comfort and emotional support. Simply knowing that someone is waiting for me and that there is still something wonderful ahead can make a difficult working day much easier.
And that is exactly how it is today. 😅
Pain is unfortunately part of my life with Fabry disease, but it does not define everything. Liza, my son and the anticipation of spending time together are my personal anchors. They cannot simply take the pain away, but they help me get through the difficult hours.
Now I would love to hear from you:
What do you do when you are not feeling well? What is your personal anchor during difficult moments?