RareDeseases + LensMagic1974 | Site-Wide Activity https://rarediseaseslensmagic1974.net/activity/ Activity feed for the entire site. Tue, 28 Jul 2026 06:28:35 +0000 https://buddypress.org/?v= en-US 30 hourly 2 4ef3ed56a6ae1829f634a7747576f591 daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=1376 Tue, 28 Jul 2026 06:28:35 +0000 The Power of Being Seen There is something every human being longs for. To be seen. Not for what we have achieved.Not for what we own.Not for how strong we […]

]]> e2fa9ea7b1cb7882ba2a7c4a3f117830 daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=1359 Fri, 24 Jul 2026 06:18:06 +0000 Die Menschen hinter den Geschichten Es gibt Tage, an denen ich durch meine Kamera schaue und mich frage, was ein Foto eigentlich wirklich zeigt. Ist es ein Gesicht? Ein […]

]]> 42a6f59e85184cbd6000652e2b4eb77b daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=1338 Wed, 22 Jul 2026 06:07:23 +0000 The World Looks Different When You Choose Hope Sometimes life doesn’t change overnight. Our diagnosis stays the same.Our challenges remain.Some days are still harder than […]

]]> d2bed0e7fc2d60eca465c3ef7bcaeec2 daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=1261 Fri, 17 Jul 2026 09:42:49 +0000 You Don't Have to Have the Same Disease to Understand Each OtherWhen people hear the words rare disease, the first thing they usually think about is the diagnosis. They wonder what the disease is called, […]

]]> 87e832e64964b759e3cf25432be0f629 daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=1158 Wed, 15 Jul 2026 08:40:58 +0000 WolfWenn du für eine Woche ein Tier sein müsstest – welches wärst du und warum? If You Could Be an Animal for One Week – Which … Read More »

]]> 44caf2c990f85ce56fc00bd7462d6ed2 daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=1028 Thu, 09 Jul 2026 12:08:05 +0000 The Little Things Along the Way Sometimes I set off without any particular destination in mind. Just getting outside. Camera with me, Liza of course too — and t … Read More »

]]> d761f7ebebfe6f049b54fd8418a84fbc daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=1019 Wed, 08 Jul 2026 10:41:32 +0000 Sometimes, Just Take the Wrong TurnI’m actually one of those people who likes to know where I’m going. At least, that’s what I like to tell myself. The truth … Read More »

]]> 91645f8c756767a0b453a1db207378b1 daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=972 Mon, 06 Jul 2026 07:14:54 +0000 I’m 51 – And I Still Have So Damn Much I Want to Do51 years old. When I look at that number, I have to smile a little. Because somehow, 51 sounds pretty grown-up. Almost as if, … Read More »

]]> 8ad7cc0bb387d635cfe66c814a34054e daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=956 Wed, 01 Jul 2026 11:04:48 +0000 Morbus Fabry and the WeatherMorbus Fabry and the Weather – Sometimes My Body Knows the Forecast Before I Do Have you ever experienced this? You look o … Read More »

]]> e09ae84b0d254e979324d890f3c0c5c8 daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=938 Fri, 19 Jun 2026 14:27:18 +0000 MFSH Jahrestreffen in Bad Salzschlirf Auch dieses Jahr gibt es wieder das Jahrestreffen vom Morbus Fabry Selbsthilfeverein. Dieses Jahr ist die Lokation das Badhotel in … Read More »

]]> b13f7a3217d881a3da50f375b9345200 daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=919 Wed, 10 Jun 2026 12:27:06 +0000 As twilight bids farewell to the day, the magic of the little lights begins. ✨ These glowing dragonflies seem to dance weightlessly through the evening air, transforming an ordinary moment into something … Read More »

]]> 335f75c9fec0cc539205a48707402010 daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=909 Sun, 31 May 2026 06:41:06 +0000 Slow worm Slow worm on a paved path, viewed from above. 🍃✨ Small, unnoticed, yet fascinating. Today, a slow worm crossed my path. Many peop […]

]]> 21a73b1bb03cdf54c500b01ac3546848 daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=893 Fri, 29 May 2026 06:53:40 +0000 Sight City Frankfurt 2026 Auf der diesjährigen Sight City (Messe in Frankfurt am Main für blinde und sehbehinderte Menschen) gab es ein freudiges w … Read More »

]]> 7bf1d665e85232b772e915eebd0f1c49 daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=886 Mon, 25 May 2026 08:30:54 +0000 Ingelheim Fire Department FestivalIngelheim Fire Department Festival The weather was absolutely beautiful yesterday—30 degrees and sunny—so we went to the fire department festival in Ingelheim wit … Read More »

]]> 880ec9b0095e2c892a0a094859d23316 daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=877 Sat, 23 May 2026 04:51:05 +0000 An Unexpected Encounter: Who Blinks First? brown hare There are those days when you go for a walk just to clear your head, lost in thought. You don’t expect anything … Read More »

]]> e89e5d428cb88ac25cb344a7522b2eeb daniel.kraus wrote a new post https://rarediseaseslensmagic1974.net/?p=842 Sun, 17 May 2026 06:40:24 +0000 Being in nature Spring. Sun. Scents of Nature. Noises. Spring is such a beautiful season. Fabry disease. Small fiber neuropathy. … Read More »

]]> bd484920ffcf5a849c05fb8f649bb833 daniel.kraus replied to the topic "Morbus Fabry" - https://rarediseaseslensmagic1974.net/activity/p/3/ Mon, 23 Feb 2026 18:08:48 +0000 https://fb.watch/FskcijiFS4/
 
Please look and share. 🙂

]]> 0 5260b1e97edaa1f5252641157d85dfb1 daniel.kraus posted a new topic "Rare Diseases" - https://rarediseaseslensmagic1974.net/activity/p/2/ Wed, 11 Feb 2026 07:46:13 +0000 In this forum, everything revolves around rare diseases.

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