Willkommen bei Rare Voices · Welcome to Rare Voices
Ein wertschätzender Ort für Menschen mit seltenen oder chronischen Erkrankungen, Angehörige und Unterstützende. Seltene Erkrankungen bleiben unser besonderer Schwerpunkt – zugleich ist jede chronisch kranke Person herzlich willkommen. Teile Erfahrungen, stelle Fragen oder lies einfach mit.
A supportive space for people living with rare or chronic illnesses, families and allies. Rare diseases remain our special focus, while everyone living with chronic illness is warmly welcome. Share experiences, ask questions or simply read along.
Lesen ist ohne Konto möglich. Zum Schreiben registrierst du dich kostenlos. · Reading is open to everyone. Free registration is required to post.
Hello and welcome!
Hello and welcome!
We are truly happy that you are here.
Rare Voices Community is a place where people living with rare diseases, their families, caregivers and supporters can meet, learn from one another and feel understood.
Whether you have just received a diagnosis or have been living with a rare disease for many years, you are welcome.
Before you explore the community, we would love to get to know you.
Please visit the "Introduce Yourself" section and tell us a little about yourself.
There is no pressure to share personal information. Share only what you feel comfortable sharing.
Together we can create a supportive, respectful and hopeful community where every rare voice matters.
Welcome!
— Daniel
Founder of RareDiseasesLensMagic1974