CommunityMenuForum NavigationForumMembersActivityForum breadcrumbs - You are here:Rare Voices CommunityWelcome & Getting Started: Welcome to Rare VoicesHello and welcome!Post ReplyPost Reply: Hello and welcome!<blockquote><div class="quotetitle">Quote from <a class="profile-link highlight-admin" href="#">daniel.kraus</a> on July 12, 2026, 9:31 am</div><p>Hello and welcome!</p> <p>We are truly happy that you are here.</p> <p>Rare Voices Community is a place where people living with rare diseases, their families, caregivers and supporters can meet, learn from one another and feel understood.</p> <p>Whether you have just received a diagnosis or have been living with a rare disease for many years, you are welcome.</p> <p>Before you explore the community, we would love to get to know you.</p> <p>Please visit the "Introduce Yourself" section and tell us a little about yourself.</p> <p>There is no pressure to share personal information. Share only what you feel comfortable sharing.</p> <p>Together we can create a supportive, respectful and hopeful community where every rare voice matters.</p> <p>Welcome!</p> <p>— Daniel<br />Founder of RareDiseasesLensMagic1974</p></blockquote><br>CancelShare this: Share on Facebook (Opens in new window) Facebook Share on X (Opens in new window) X Share on LinkedIn (Opens in new window) LinkedIn Share on Pinterest (Opens in new window) Pinterest Share on Reddit (Opens in new window) Reddit