News & Insights

Sight City Frankfurt 2026

Small Adventures Matter: Photography While Living with Chronic Illness

Photography cannot change chronic illness, but it can change where we direct our attention. A personal reflection on small adventures, realistic planning, and creating meaningful memories with limited energy.

Welcome to our News and Insights section. Here, we keep you updated on news regarding rare diseases, new photography projects, and important dates.

Latest Updates

Events

Events I will be attending

October 10, 2026 – SEBRACON – Convention for Rare Diseases – Berlin, Germany

https://sebacon.de

June 03 – June 04, 2026 – European Conference on Rare Diseases & Orphan Products (ECRD) – Prague (Hybrid, online possible)

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