The Power of Being Seen
There is something every human being longs for. To be seen. Not for what we have achieved.Not for what we […]
Blog
Blog
Die Menschen hinter den Geschichten
Es gibt Tage, an denen ich durch meine Kamera schaue und mich frage, was ein Foto eigentlich wirklich zeigt. Ist
Blog
The World Looks Different When You Choose Hope
Sometimes life doesn’t change overnight. Our diagnosis stays the same.Our challenges remain.Some days are still harder than others. But something
Blog
You Don’t Have to Have the Same Disease to Understand Each Other
When people hear the words rare disease, the first thing they usually think about is the diagnosis. They wonder what
The Little Things Along the Way
Sometimes I set off without any particular destination in mind. Just getting outside. Camera with me, Liza of course too
Sometimes, Just Take the Wrong Turn
Sometimes the wrong turn leads to the best stories. A personal reflection on cycling, photography, curiosity, and the beauty of unexpected detours.
Blog, Über mich
I’m 51 – And I Still Have So Damn Much I Want to Do
51 years old. When I look at that number, I have to smile a little. Because somehow, 51 sounds pretty
Allgemeines Blog
Morbus Fabry and the Weather
Morbus Fabry and the Weather – Sometimes My Body Knows the Forecast Before I Do Have you ever experienced this?
MFSH Jahrestreffen in Bad Salzschlirf
Auch dieses Jahr gibt es wieder das Jahrestreffen vom Morbus Fabry Selbsthilfeverein. Dieses Jahr ist die Lokation das Badhotel in