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Have a coffee first
Du erhältst großartige, unglaublich fantastische Neuigkeiten. Was machst du als erstes? No matter what happens, I always need a coffee first.If it’s really good news, I’m thrilled, but I still need a coffee.If it’s not such good news, I still need a coffee. So I always need a coffee, which of course tastes so much…
chocolate
Was ist deine Lieblingssüßigkeit? I love chocolate, especially the kind with grapes and nuts.In the evening, when I’ve finished my daily chores, I have time to relax on my sofa, watch some TV, and enjoy some chocolate. For me, that’s the perfect way to unwind.I don’t need much to be happy, but I definitely need…
Anja, 41 years old, mother of four
Anja may not have a rare disease, but she is a very strong woman who has won the battle against cancer. Watch Anja’s video, it’s worth it.
A perfect day
Beschreibe deinen perfekten Tag von Anfang bis Ende. I wake up without an alarm, right when the light starts to spill softly through the window. No rush, no obligations. I take my time with my first coffee, barefoot, enjoying that quiet feeling that today is mine. The fresh air calls, so I grab my bike…
Welcome to Rare RareDiseases Patient
Morbus Fabry My Fabry Story Interviewed by D.K. from Rarediseases+lensmagic1974 A surprising diagnostic – how quickly a life can change! Sebastian M. is 51 years old and originally comes from Münster, Westphalia. In the meantime, he lives in a small town between Mainz and Bingen, thus enjoying the Rheinhessen landscape. Sebastian worked in nursing for…