Projects

The connection between photography and rare diseases.

A close-up portrait of a person with a rare skin condition, softly lit to emphasize their natural beauty.
A close-up portrait of a person with a rare skin condition, softly lit to emphasize their natural beauty.
Portraits

Sensitive images that tell stories.

A monochrome photo capturing the hands of an elderly patient with a rare neurological disorder.
A monochrome photo capturing the hands of an elderly patient with a rare neurological disorder.
A gallery display showing a variety of photos featuring different individuals affected by rare diseases.
A gallery display showing a variety of photos featuring different individuals affected by rare diseases.
Behind-the-scenes view of a photographer consulting with a rare disease patient during a photoshoot.
Behind-the-scenes view of a photographer consulting with a rare disease patient during a photoshoot.
Stories

Insights into the lives of those affected.

Frequently asked questions

What are rare diseases?

Rare diseases affect few people and are often difficult to diagnose.

How does this platform help?

We connect those affected and provide information and inspiring photography.

Can I share my story?

Yes, we welcome personal accounts and photos to raise awareness.

Who is behind the platform?

A team of people affected by the condition and photography enthusiasts with heart.

How can I help?

Share our content or send us your photos and stories. If you have a few cents to spare, feel free to send them our way.

PayPal: daniel.kraus@magenta.de

Are there regular updates or events?

Yes, we provide information about news and organize virtual meetings for those affected.

About rarediseases+lensmagic1974

My platform connects people with rare diseases through the power of photography.

A warm portrait of a person holding a camera, surrounded by images representing rare diseases.
A warm portrait of a person holding a camera, surrounded by images representing rare diseases.
My mission
My vision

We create a space where stories become visible and understanding of rare diseases grows.