RareDiseases Support Groups

This blog introduces various associations and groups for people with rare diseases.




This blog introduces various associations and groups for people with rare diseases.



Was ist dein Lieblingsgetränk? My favorite drink is definitely coffee. For me, there is hardly anything better than starting the day with a freshly brewed cup. The aroma alone wakes me up and immediately makes me feel more comfortable. I love the variety that coffee offers. Sometimes I drink it strong and black when I…
Beschreibe deinen perfekten Tag von Anfang bis Ende. I wake up without an alarm, right when the light starts to spill softly through the window. No rush, no obligations. I take my time with my first coffee, barefoot, enjoying that quiet feeling that today is mine. The fresh air calls, so I grab my bike…
Anja may not have a rare disease, but she is a very strong woman who has won the battle against cancer. Watch Anja’s video, it’s worth it.